The Epidermolysis Bullosa Medical Research Foundation (EBMRF)
EBMRF is a volunteer nonprofit foundation dedicated to the support of medical research of Epidermolysis Bullosa (EB), its causes, the development of successful treatments, and ultimately, its cure.

Dystrophic Epidermolysis Bullosa Research Association of America (DebRA)
A voluntary, non-profit organization dedicated to finding a cure for EB. This site contains news and research information on EB.

EB World Info
A site with a vast amount of information on EB along with many stories of EB sufferers. Features EB kids and their mothers.